Cometary Tales All That Was Asked,Blog The names in “All That Was Asked”

The names in “All That Was Asked”

A cylindrical spacecraft with long solar panels spreading out on both sides.

In my previous post, I tried to explain how all those odd names ended up in my recently-published book and why I think it’s fun to play around with languages in the middle of a story.

So, what if you don’t really care about all that linquistic nonsense, but just want a guide to pronouncing stuff in this particular story?  In what follows, I’m going to share what I’ve prepared for the person doing our audio book.  On the surface, it may look daunting, but, really, it all hangs together with a few key elements:

Sensei, in Kanji
Source: japanesewithanime.com 
(CC BY-SA 4.0)
  • Lots of the names end in a shortened “ay” sound I’ve tagged here as ei. It sounds almost like a long ay, but is cut short like you were going to pronounce a “y” on the end, but stopped yourself just in time, “say” without that teensy “eeya” sound that wraps up that word. Sort of like “sensei” as pronounced in Japan, or at least in anime and Japanese TV shows.
  • In names ending in e, the final e is always sounded–usually as that shortened “ay” sound.
  • The exception is “ere”, which is ayr-ee, wherever it happens to fall, so some names end with ayr-ee, while some have that in the middle or at the beginning.
  • Children (or adults being teased as if they are children) or intimate friends get their names shortened with a bit of a stop in the middle, so Ansegwe becomes An-s-wei, and Kantalare becomes K-a-la-rei
  • As an example of the “translated words” system: the “aunts” are “awnts”, Brit/Northeast/Southern style, rather than Midwestern style “ants”.

Digression: How come I like weird names?  Well, jeepers, I’ve got one of my own, one that often gets pronounced weird, though I don’t care, really, I’ve heard ’em all.  The “correct” way is va-‘ness-uh ma-‘cla-ren-‘ray.  There are other pronunciations in use . . . but those are other Vanessas and other MacLarens. 

OK, here we go.  I’m not using really formal linguistic notation, but sound-shorthand that I think we all can follow. I put a single quote at the front of the stressed syllable in each word. 

  1. Our Main Characters

Varayla Ansegwe, Eskenyan Jemenga, Ensense Kantalare, Varaylas Ansele and Adeleke, and Haillyen.  These all appear frequently, though it takes a while for Kantalare to show up.  See how what we call “last names” (family names) come first, and “first names” (personal names) come second.

Wary, indeed.
Photo of sketch on wall, by Quinn Dombrowski, Berkeley, CA (CC BY-SA 2.0)

Varayla: Va-‘ray-la This one’s pretty phonetic, the tricky thing, from listening to auditions for our audio book, is that some people seem to read the “yla” as “lya”.  This reminds me of how people read the second half of my last name as “Wary” instead of “Wray”.  Don’t let it worry you, but if you prefer mispronouncing Varayla, just don’t go to Korlo. In the bad old days, you could earn a set of cement overshoes for mispronouncing that name to the wrong person.

Ansegwe: ‘ahn-seg-wei Our hero’s name is most likely to be mispronounced as on-‘seg-way, which is hilarious, as it makes me picture this enormous klutz trying to ride a Segway.  The first syllable should be said relatively slowly, so the second two click together fast, so that you almost lose the sound of the “e” in the middle: ahns’gwei. It has a kind of Japanese flavor to it.

Eskenyan: ess-‘ken-yan It sounds sort of like “a person from Kenya” (at least the way Americans say it) plus “Ess” in front of it.

Jemenga: ja-‘meng-uh When Jemenga is particularly pleased with himself, he really hits that middle syllable, so it’s like Ja-MENG-ah!

The Varayla Syndicate’s above-board operations include space-based solar power satellites.
(Not quite like this. This is NASA’s Solar-b satellite)

Ansele: ‘ahn-se-lei Tycoon aunt #1.

Adeleke: a-‘del-e-kei Tycoon aunt #2.

Haillyen: ‘hay-ul-lee-yen This is a “foreign” word to Ansegwe, so he’s basically phonetically “translated” it, the ‘y’ in the last syllable is a  bridge sound you get when putting ee and en together between the ee and the en.  Do ya get it? Yeah?  The reader should get it about 100 pages before Ansegwe catches on.

Ensense: en-‘sens-ei  You know, like, “sensei” with an “en” at the front.

Kantalare: kahn-tah-‘lahr-ei There’s a secondary stress on the first syllable.  Just make it sound pretty in your head.  Ansegwe is totally in love with her, so, whatever, hear her as beautiful

2. The people on the expedition

Some of these folks are only mentioned or quoted during the “expedition” chapters.

Tkonle: t-‘kawn-lei

Kulandere: koo-lahn-‘dayr-ee

Tekere: ta-‘kayr-ee

Tereinse: ‘tayr-ee-in-sei

Alekwa: ah-‘leek-wah

Nara: ‘nah-rah

Ensargen: en-‘sahr-gen It’s a hard g, as in “gun”, not a soft one as in “generation”. They don’t really use hard “g”

Korton: ‘kor-tun

Alawere: ah-la-‘wayr-ee

Tasegion: tah-‘seg-ee-on

Turame: too-‘rah-mei

3. People at home

Kateseo: ka-‘tay-see-oh

Kinshada: kin-‘shah-dah

Tumbal: ‘toom-bal

Erekulu: ayr-ee-‘koo-loo OK, this one isn’t a person, he’s a domesticated animal, so his name is a little goofy, meant to sound cute.

Tokal: toh-‘kahl

Ans’we: ‘ahn-se-wei This is a nickname for Ansegwe, used mostly by Kantalare, but also used by his expedition “friends” when they want to get on his case.

K’alare-: kah-‘lahr-ei This is a nickname for Kantalare, used by Ansegwe.

Az-dyel: ahz-dee-‘ell Note that this is another “foreign” word that Ansegwe has transcribed this way, so it’s pretty phonetic, the three syllables have almost equal stress, I hear just a little more on the last one, but you can feel more free to mess around with this one–it’s the ONLY word in this language that appears at all.

Eskewere: ess-ke-wayr-ee

Ensense Halense: en-‘sen-sei hah-‘len-sei This is a member of Kantalare’s extended family that they happen to run into at some point. 

4. List of authors. 

About two-thirds of the way through, someone gives Ansegwe a reading list, and the authors of the books are a mix of people from his world, one from outside his culture, and one (the last) he’s going to spend a lot of time with. I wouldn’t worry about these too much, but have fun with them.  Yeah, uh-huh, that’s intentional.

Asvelan Kulumbu: ‘ahs-veh-lahn  koo-‘loom-boo

Palawan Vejr: ‘pah-lah-wahn  vee-‘yay-zher

Trjia Qwijlian: ‘trr-zhee-ah  ‘kwizh-lee-ahn

Tsulander Tkonle: ‘Tzoo-lahn-der  T’kawn-lei

5. People in quotes.

Yeah, this is one of those books where each chapter opens with a quote from someone.  I picture these as remarks that people who know Ansegwe have made when interviewed about the events in the story.  Picture them sitting across the desk on their version of The Daily Show, chatting with their Trevor Noah.  Most of the quoted individuals made it into the final.  A few only get mentioned in these quotes.  These ones are mostly government officials.  Make them sound stuffy, self-important, and less-than-competent.

Insake Hailaware: ‘in-sah-kei  hai-uh-la-‘wahr-ei (For fussiness, there’s a secondary stress on first syllable in Hailaware. He will get all huffy if you miss that and maybe will find some minor infraction to write you up for.)

Elesennen Haileski: el-es-‘sen-en  hai-uh-‘les-kee

Kinsala Tkerelon: kin-‘sah-lah  T-‘kayr-ee-lon

6. Other words and place names.

The story takes place in a fairly limited set of “alien” geographic locations.  But I do have some place names included and there are a few other “thing” words that appear more than once.

The Kalinidor is something like this.
Alexander Fleming’s Nobel Prize (1945)
(Jemenga would discover penicillin if someone else hadn’t already.) Source: Science and Society Picture Library, London Museum of Science (CC BY-SA 2.0)

Korlo: ‘kor-low It simply sounds like “core” “low”.  This is Ansegwe’s country. 

Kalinidor: ka-‘lin-ee-dor This is a person’s name that’s become an object name–sort of like the Nobel Prize, well, actually, exactly like the Nobel prize.  Jemenga really really wants one of these.

Quazwallade: kwaz-‘wall-ah-dei  This is a place name, just a foreign country, one with some technological and cultural differences from Korlo.

Cignali: sig-‘nah-lee Let’s say that probably this was originally a person’s name, but now it’s the name of a famous university, think “Stanford”.

Utumwe: oo-‘tum-wei I told you there were academics in this story.  This is another university, a medical school actually, one that Jemenga lectures at, when they can get him.

Terende: ta-‘ren-dei  Another place name.

Tule: ‘too-lei Yep, place name. Doesn’t get much play, but even minor places count, says the writer who lives in a town that isn’t a proper town, just a collection of farms, houses, shops, and a gas station, that gets its own post office.

You might also like to read:

Lessons of a BayCon Gofer: Jill of All TradesLessons of a BayCon Gofer: Jill of All Trades

In 2014, BayCon had its traditional four days to work with, and Friday was an ease-into-the event day. This was a great time to turn up at the Gofer Hole and ask if they needed help. “Yes!” being the inevitable answer. Warning: if you try this, there ARE forms! If you are a kid, there are parental signatures required. So I signed away liability for the horrific injuries and possible death that might occur as a result of my participation in the duties of a fetch-and-carry helper in a nice hotel constructed to meet modern building codes. More likely: infection by a zombie virus, but ha on them, they didn’t mention zombie viruses in the release form.

The reward for filling out forms: my first badge ribbon of the Con. Yes, this means I am Gofer #18. Shades of Caddy Shack.

Meet Gofer #18

Meet Gofer #18

So what does a Gofer do? Take a deep breath, plunge in. Oh, it is soooooo difficult.

Job #1: Go to the Big Ballroom, to help set up for some event tonight. No idea what the event is. The person who called for help? He’s not there. No one knows what he wanted done. But the guy hanging lights at the Art Show needs an assistant.

Job #2: Help hang lights at the Art Show. Now, actually hanging the lights is a Skilled Job, not a Gofer job. My job is to hand cable ties to the exhausted electrical tech, whose ladder-climbs for the weekend have already gone into the triple digits.   And to help spot weak links in the chain of power-strips and extension cords feeding electrons to the downlamps positioned to light the display boards for the art. Artists are already checking in, placing their work, jockeying for prime display spots in the venue. Still, we proceed up and down rows with a stepladder and a bundle of cable ties.

Job #3: The original person who wanted help is back. He needs a banner snapped onto a big framework thingy. It’s a multi-gofer job that takes some cooperation, especially amusing as none of us assisting with this thing have any idea what it’s for. My engineering brain helps with figuring out the layout itself, and we get the fabric stretched out nicely, but my partner gets to actually do most of the actual attachment, since there is a power element to the task.

Job #4: Hang around in the Gofer Hole, being On Call. Seriously, being available counts as working. Yes, indeed, this is even better than counting billable hours in my consulting practice. Dang, if only I could bill clients for time I’m home & my phone and email connections are working.   There are snacks here—bagels, mmmm. And electrical outlets, so I can plug in my netbook & work on a Messy Monday project.

Job #5: Schlep groceries for a party. Some longtime VIP staffers are having a private party. Their goodies for the party are stowed in the Gofer Hole. We On-Call Gofers have the hugely easy job of carrying the goodies a hundred feet down the hall. [Hint:  helping with a party does entitle one to partake of the party.  Generally speaking.  I did not take part, having a prior engagement with a soda machine.]

Job #6: Load sodas into the Charity Soda Machine. This is a magical device in the Games Room that converts geeks’ need for carbonated sugar- or aspartame-water into monies for this year’s charity fundraising. I was briefly concerned that I would run into difficulties with my limited weight-lifting capabilities. But the job soon devolves into a three-stage process free of excessive lifting:

Stage A: Wander about looking for the Keeper of the Soda-Machine Keys.

Stage B: Wait for the Individual Authorized to Use the Humungous Hand Truck

Stage C: Leave when Keeper of the Machine appears and disavows any need for help

Job #7: Build a LARP set. Someone has created a live-action role-playing version of a card-based game called “Kill Dr. Lucky”. This is a game I have never heard of, but someone has gone to great lengths to build an accurate, room-sized playing field that live humans can walk about on as if they are playing pieces in the game. Our mission: assist this charismatic lunatic by moving chairs out of the way, laying out the sheets his friend has carefully marked out with lines and labels, getting each in proper orientation to the other and smoothing out the boundaries with tape. By the time we are done, I’m determined to show up and try out this LARPing thing.    P1210948 The LARP Field2

And by this time, I’ve put in totally enough time as a Gofer for one day, while the activities I’m least interested in on the program are conveniently over.

My Very Own Ray Gun

My Very Own Ray Gun

I have time to dash up to the DIY room before dinnertime and make myself a cool ray gun by artistically decorating a plastic gun with gold and silver and red and purple and green Sharpies.   It is my favorite toy already. So shiny.

And I wouldn’t want anyone to think one has to devote the entire day just Gofering about. I did skip an hour of possible On-Call credit for a panel on the relative merits of James Bond and Doctor Who. And regretted it. There is no contest. Doctor Who is way, way cooler than James Bond, but the panel was mostly a bunch of guys keen on car chases in movies.

Finally, yes, I did get to play Kill Dr. Lucky. It was super fun, and while I cannot claim to be the One Who Did the Deed, the evil Dr. L was indeed assassinated. Here is our team’s creative enactment of the impending demise of the successful assassin.

Let's Get Doctor Lucky's Killer

Let’s Get Doctor Lucky’s Killer

 

 

 

 

 

 

 

 

 

 

Gofer Lesson of the Day: Sign up early & there will be lots of easy jobs to do while the con is barely getting started.  There’s never a dull moment, or if there is, you can get credit for working by napping while On Call.  And don’t leave home without a suitable weapon.

Have Ray Gun, Will Shoot

Have Ray Gun, Will LARP

 

 

 

Monday at BayCon 2013Monday at BayCon 2013

There are fewer options on the final day, and the available time is short, so opportunities for plans to stray from reality are fewer.  We’d expect less divergence…here are the results of our field test:

Time Frame What the Plan was What really happened
Monday morning Sleep in a bit, then go to session on James Bond vs Dr Who, and finally pick up art if I win any auctions.

One of Patricia McCracken's Little Dragons came home with me!  Find your own here http://www.patriciamccracken.com/miniprint.html

One of Patricia McCracken’s Little Dragons came home with me! Find your own here .

Did sleep in.  Fed horses & scooped manure, too.  Didn’t arrive until close to noon.Trekked to the Art Show first to pick up the two pieces I’d bought, but then also discovered my single bid on the dragon-butterfly print was the winning bid.  So paid and went to look for that panel talk.  JB vs DW still ongoing, but after a half-hour I figured I’d had about all I needed on the topic.  So no regrets about turning up so late. 

My next move was to get my art safely into the car, though I did make a detour to make sure there was no boffering available today.  Dang.  Just another panel talk going on in what had been Boffer Central.

 

So I betook myself down to the Gaming Room to buy a coke and eat lunch.  Two older teenagers who had joined in on the dancing last night were there playing some form of D&D.  The one thing I haven’t done at this convention is play games, and it looks like that will have to be another time.  For now, I just have to settle for having spent some time hanging out in the Gaming Room.

Monday afternoon Go to session on “how to build a spaceship.”  Go home!

First firing of the Falcon 9-R advanced prototype rocket. Via Elon Musk on Twitter. Read more: http://www.universetoday.com/102692/spacex-tests-falcon-9-r-advanced-reusable-prototype-rocket/#ixzz2WVt42LYG

First firing of the Falcon 9-R advanced prototype rocket. Via Elon Musk on Twitter.   At least there is a good place to read about the topic I skipped:  start here.

 

MKB's latest novel in the Star Wars universe

MKB’s latest novel in the Star Wars universe

 

 

California Autism Foundation

California Autism Foundation

 

diy

 

 

 

 

 

It was easier to walk to the media tie-in panel from the Gaming Room, so that’s where I went.   I hadn’t actually looked at the list of panelist, so it was a pleasing surprise to see Maya Kaathryn Bohnhoff  there, in her capacity as a leading author in Star Wars novels.  Her panel partner, Kevin Andrew Murphy, works also in gaming tie-ins and had a much more positive spin on the quality of that literature than the board-game guy in yesterday’s panel.  Overall, I gained a much better picture of life as a tie-in fiction author.  And an appreciation for authors who can face intense fans in the middle of a panel.    Btw, about half the people in the audience are people I recognize.So things were winding down, including the dealer’s room.  So I went on up to the closing ceremonies.  In between that and the “hiss and purr” session, there was some dead time.  I poked my head into the Art Room to see how the art auction had wrapped up.  One of the women I remember from dancing last night was clutching the steampunk flamingo.  Turns out it hadn’t had any bids, so the artist had offered it to her at a lesser price in order to avoid hauling it home.  Good for her! 

Next stop:  the Gaming Room, for one last donation to the California Autism Foundation (the beneficiary of the Charity Vending machine) from which I gained a Coke for myself and an accidentally-vended ginger ale which I could donate to one of the nearby volunteers.

 

I was determined to stay for the critique session because I wanted to praise the DIY idea.  The downside was having to sit through a huge laundry list of facility complaints and an equally lengthy recitation of praises for hotel staff.  However, managed to retain my nerve enough to actually participate in the “programming” discussion.

 

After that subject was concluded, I took off for Nob Hill.  Not the SF landmark, the grocery store.  Got home before the guys and even fixed dinner for everyone.  Does tacos count as dinner?

 

Rain(man), Rain(man), Go AwayRain(man), Rain(man), Go Away

This isn’t so much a blog post as a paper. There are footnotes and citations. Bear with me.

Have you had this experience? Someone in a group discussion notes that April is Autism Awareness Month. Then someone else says, “Oh, remember Rain Man? I watched it again recently! Isn’t that a great movie?” And then everyone has a lovely chat about movies. Unfortunately, this kind of response is what gamers call an Epic Fail. Let’s walk into April with some better awareness.[1]

So, what is autism? What isn’t it?


Photo Credit: Nina from Australia, Rain, Rain, Go Away (CC BY 2.0) via Wikimedia Commons

What it is

Autism is a set of neurological characteristics found in as many as 1 in 50 people [2,3] that can lead to difficulties with social interactions, repetitive behaviors, or intense engagement in special interests. Not necessarily all these things. (So, you know 100 people? Well, you likely know a couple of autistic people.)

Nobody knows what “causes” [4] autism, although probably there are combinations of genes that are more likely to yield autistic characteristics. (It may run in families, like other polygenic characteristics, such as height.) Autism presents on a spectrum, so its current designation is Autism Spectrum Disorder (ASD)…though many autistic people will counter, “there’s nothing disordered about me!”

What it isn’t

Autism has absolutely nothing to do with vaccines—that absurd idea was generated by publication of fraudulent research, a real-world hoax that has harmed untold numbers of people [5,6,7]

Autism is not Rain Man. Dustin Hoffman did his best, and the film made a positive difference at the time, but that was over thirty years ago. The movie is now woefully out of date, and most autistic people find it discomfiting, stereotyping autism, families of autistics, and the way the world perceives them.

Autism is not sociopathy/psychopathy/other-mispercepathy. The number of mysteries or thrillers or police procedurals in which the murderer/terrorist/stalker is a shifty-eyed, unempathetic, twitchy weirdo whose speech patterns and movements and sometimes specific labelling code them as “autistic” make my hair curl. No, the autistic people of the world are not spying on you, plotting the perfect murder, or designing weapons of terror. Instead, as a class, they are the kindest people you know.

Autism is not the strange child. The vast majority of autistics are adults. Autism doesn’t go away when you grow up. Why don’t you notice? Those whose difficulties with the world are great still live in relative isolation. As for the rest, they’re “masking.” This isn’t a lighthearted improv exercise. It is a progressive modification of behavior—often unconscious, in ways learned over many years—to appear more like you, because they’re pretty sure you won’t accept them otherwise. (So, maybe this should be Autism Acceptance Month.)

Masking isn’t perfect; you probably think of your autistic friends as ‘the little-bit odd one’ or the ‘cute, quirky one.’ You may not see them around as much as your other friends—because keeping up masking is hard work. The older an autistic person is, the better they can be at masking—but then, it’s harder for them to change that. Also, be aware that if you realize a friend is autistic, it doesn’t help to tell them to stop masking. It’s a difficult process, and they’ll let you know when they’re ready.

Photo Credit: Dietmar Rabbich (CC BY 4.0) via Wikimedia Commons

Unfortunately, old movies like Rain Man leave the impression that all autistic people are weird geniuses, can’t take care of themselves, and suffer extreme difficulties with life. Yes, some are in that boat (and a rare few are even geniuses). It’s important to be sure everyone’s properly supported in life—can we simply agree to support autistic people with needs just as we support neurotypical (NT) people with serious life issues?

A few thoughts to keep in mind, no matter what type of neurons you’re thinking with:

Autistic people are, as a group, extremely honest. This presents complications—because most autistic people don’t react in conversation in quite the exact way that neurotypicals expect. For instance, if someone doesn’t look you in the eye all the time—a favorite behavior of NT’s—they’re perceived as “dishonest”. That’s unfortunate…which is why ambitious autistic adults work hard to make eye contact, even though it may be enormously stressful to do so.

Autistic people are empathetic—and have all the same emotions you do. They may express their emotions a little differently, but that doesn’t mean they don’t have the exact same feelings you experience. Your autistic friends may even be more likely to notice how you’re feeling and to empathize with you, because they are observing you and working to figure you out, all the time. So they’re not just in possession of that deep, humanizing characteristic, they’re actively working at it, every day.

This doesn’t mean that autistic people are all perfect, wonderful, nice, diligent, hardworking, or what-have-you and are somehow better than neurotypical people. Everyone has shortcomings—and autistics don’t need to become the next perfectionist minority. It’s just that the stereotypes (weird, twitchy, untrustworthy) are contradictory.

If you’re reading this, you’re probably part of the reading/writing community. Here’s another thought for you.

Well. Ummmm. YOU might be autistic. Nobody wants to think of themselves as “different,” but writers—whether they’ve gone the publishing route or not—draw heavily from a well of “difference.” Lots of us grew up feeling like we were “on the fringe” or “the odd one out.” We dive deep into the special interests that drive our work. We can go on and on and on about a character or a situation or a plot point—whether in a story we wrote or in one of our favorites. Heck, some of us can sit down and hammer out 50,000, 100,000, a million words. That’s hardly what nonwriters would call “typical.”

If you’ve secretly, quietly wondered if there’s something you don’t know about yourself that maybe you should, here is one easily-accessible book to read: Cynthia Kim’s Nerdy, Shy, and Socially Inappropriate is a clever, affecting story of one woman’s journey of self-discovery. Some terminology it uses, unfortunately, became outdated the year after publication, with the elimination (for very good reasons) of the problematic term Asperger’s [8,9], but the self-realization content still holds up.

A cautionary note: take with gigantic doses of salt anything coming from the group Autism Speaks. They will be rather shouty during April and their old puzzle-piece logo will be cropping up all over, but this group is widely derided by autistic people as not speaking for them and, worse, actively spreading misperceptions about autism [10] and promoting [11] the application of abusive ‘therapy’ [12].  Many autistic people therefore consider Autism Speaks to be a hate group [13], but even without that label, their role in the politics of disability is subject to serious question [14].

Ready to raise awareness a little (or a lot) more?

Below are a couple of helpful, easy-to-access resources. You can find deeper reading by continuing to the Notes and Citations section.

Ask Autistic Adults is my current favorite website for quickly-accessed on-point information on what grown-up autistic people feel you should know:  labels, appropriate language, effective support, fake/abusive “therapies,” and more.

The Thinking Person’s Guide to Autism is a web-based organization that provides a broad array of resources and connections to useful information for autistic people and their allies.

To catch up on the current zeitgeist in the autistic community, try the hashtag #actuallyautistic. To some extent, outsiders have tried to co-opt it, but the hashtag has withstood that pretty well so far.

Now, have a very happy Autism Awareness Month, everybody!

Below the blue umbrella: Notes and Citations

A bright blue umbrella floats upside-down

Photo Credit: Tom Mrazek, An Umbrella In the Dark, (CC BY 2.0) via Wikimedia Commons

Yes, lots of notes and cites. Because a blog post needs to be brief, but the topic is complex!

  1. No one person speaks for all people in any marginalized group. I make no claims that my perspective, or those of the autistic individuals I’ve cited here, is more worthy than that of any other member of the broadly-defined autism community. This essay cannot be perfect, but I will update it as necessary, and I welcome honest, fact-based critique.
  2. “U.S. Autism Rates Up 10 Percent in New CDC Report” Bloomberg School of Health. Johns Hopkins. 26 March 2020. (Accessed 29 March 2022) https://publichealth.jhu.edu/2020/us-autism-rates-up-10-percent-in-new-cdc-report#:~:text=Researchers%20at%20the%20Johns%20Hopkins,2016%20(or%201.85%20percent).
  3. “Rising rates” of autism do not reflect changes in the incidence of autism; rather, reports like the Johns Hopkins article reflect how wider application of diagnosis reveals that more people are autistic than was thought previously. This article in particular highlights a progression over time, as researchers began attending to this data and improving their diagnostic techniques. I linked to this article because it is quite readable and provides links to the academic papers and data, for those who are interested. The choice of a headline in a public-facing news presentation can be misleading—remember to read more than headlines.
  4. Autistic people, by and large, dislike using “cause” to describe the mechanisms underlying autism. It makes it sound like a disease, something you can “cure,” and that detracts from attending to what can truly help autistic people thrive in a largely non-autistic society, understanding what “therapies” are harmful bunk, and listening to what autistics think. However, it’s the term that’s easiest for a casual reader follow in the context of a (supposedly) brief article like this one. As a reminder, this is a note to a sentence stating clearly that the mechanics are still unknown.
  5. “Wakefield’s article linking MMR vaccine and autism was fraudulent” British Medical Journal (BMJ). 6 January 2011. BMJ 2011;342:c7452. https://www.bmj.com/content/342/bmj.c7452
  6. Wakefield’s horrific piece of hoaxery was published in the Lancet in January of 1998, and its awful effects have flowed into every corner of our medical landscape—even influencing vaccine resistance during the current pandemic. By the time the journal retracted the piece, the damage was done and the evil thought-virus of ‘vaccines are scary’ had spread too far to eradicate it.
  7. Eggerston, Laura. “Lancet retracts 12-year-old article linking autism to MMR vaccines” Canadian Medical Association Journal (CMAJ). 9 March 2010. Accessed via National Institutes of Health, 29 March 2022. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2831678/
  8. Hans Asperger, the man after whom the so-called “high-functioning” side of the autism spectrum was (temporarily) named, is now known to have been a eugenicist, Nazi-assisting child-hurter, and all-around guy-you-wouldn’t-invite-round-to-dinner. The article below [9] is an accessible read and includes references.
  9. Juntti, Melaina. “It’s Time to Stop Calling Autism ‘Asperger’s’” Fatherly. 9 December 2021. https://www.fatherly.com/health-science/aspergers-vs-autism-and-hans-asperger/
  10. Lutterman, Sara. “The biggest autism advocacy group is still failing too many autistic people” Washington Post. 14 February 2020. https://www.washingtonpost.com/outlook/2020/02/14/biggest-autism-advocacy-group-is-still-failing-too-many-autistic-people/
  11. I’m not going to glorify this page with a detailed citation. This cite is here to prove that the organization supports this kind of treatment. https://www.autismspeaks.org/applied-behavior-analysis/
  12. Ira. “Why ABA Therapy Is Harmful to Autistic People” Autistic Science Person. Accessed 29 March 2022. https://autisticscienceperson.com/why-aba-therapy-is-harmful-to-autistic-people/
  13. Sequenzia, Amy. “Is Autism Speaks a Hate Group?” Autistic Women and Nonbinary Network. 19 August 2014. https://awnnetwork.org/is-autism-speaks-a-hate-group/
  14. Ne’eman, Ari. “Autism and the Disability Community: The Politics of Neurodiversity, Causation, and Cure” 1 February 2017 (Initially presented at Emory University in 2013). Autistic Self Advocacy Network (ASAN).  Accessed 29 March 2022. https://autisticadvocacy.org/2017/02/autism-and-the-disability-community-the-politics-of-neurodiversity-causation-and-cure/

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